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Crush MS is pleased to announce our participation in the first Progressive MS Day, being observed on March 28, 2018. In partnership with the multiple sclerosis (MS) community and governments across the country, Progressive MS Day shows support, offers education, and calls for more research to advance care and reduce disability for those living with the most debilitating forms of the disease.
We are calling on the MS community to join the conversation on Facebook, Twitter, Instagram and LinkedIn using the official hashtag: #ProgressiveMSDay. People can highlight resources, programs and services for those living with progressive forms of MS, as well as share their stories of perseverance and hope. Additionally, participants can show their support with a custom Facebook profile frame for the day (instructions here) Progressive forms of MS are characterized by a sustained build-up of symptoms with an insidious increase in disability.[1] With Primary Progressive MS (PPMS) in particular, disability accumulates twice as fast as in those with Relapsing MS (RMS). This means that people with PPMS experience more problems with walking, more difficulty remaining in the workforce, and require more assistance with everyday activities.[2] Approximately 400,000 people in the U.S are living with MS.[3] Up to 15 percent are diagnosed with PPMS,2 and the majority of those diagnosed with RMS will transition to a progressive form later in life.[4] Progressive forms of MS remain frustratingly difficult to treat, due to a history of unsuccessful clinical trials and limited understanding of why progression occurs. While more than a dozen medicines for RMS have been approved since the 1990s, there is one FDA-approved treatment for PPMS. More research and a deeper understanding of the biology driving this condition is needed. Groups recognizing Progressive MS Day include several national MS patient advocacy organizations and MS centers. Governments around the country will also join together to formally proclaim March 28th as Progressive MS Day; these states include California, Georgia, Michigan and Colorado, to date. [1] Progressive MS. The Condition. International Progressive MS Alliance. http://www.progressivemsalliance.org/progressive-ms/the-condition/. Accessed February 9, 2018. [2] Primary Progressive MS (PPMS). National Multiple Sclerosis Society. www.nationalmssociety.org/What-is-MS/Types-of-MS/Primary-progressive-MS. Accessed December 2017. [3] Who Gets Multiple Sclerosis. Multiple Sclerosis Association of America. https://mymsaa.org/ms-information/overview/who-gets-ms/. Accessed February 8, 2018. [4] Secondary Progressive MS (SPMS). National Multiple Sclerosis Society. https://www.nationalmssociety.org/What-is-MS/Types-of-MS/Secondary-progressive-MS. Accessed February 8, 2018.
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 Napa, CA – CRUSH MS, a local non-profit organization, donated $50,000 to Stanford University on November 12, 2016. Accepting on behalf of Stanford was Dr. Lucas Kipp, a specialist in the diagnosis and treatment of multiple sclerosis. The funds will help Stanford’s MS research programs find a cure for the disease.
Dr. Kipp was invited to Napa by Crush MS and the National Multiple Sclerosis Society in order to address the local MS community regarding the latest research developments. His report gives hope to those living with MS that progress is being made in treatment. The 2016 CRUSH MS Summer Celebration wine tasting event raised the donated funds. The 4th annual CRUSH MS Summer Celebration will be held at Reid Family Vineyards in Napa on Saturday, July 29, 2017. In addition to funding research, Crush MS is sponsoring an MS support group in Napa. The first meeting will be in January 2017. For more information, please go to crushms.org. Founded in 2014 by Kevin Reid of Reid Family Vineyards and Julie Hare of Counter Punch Wines, CRUSH MS is a network of wineries dedicated to raising funds and awareness in order to create a world free of multiple sclerosis and help people living with the disease to live well now. Saturday, 11/12/16
12:00pm-2:00pm Synergy Medical Fitness Center/Wellness Center Napa 2nd Floor Conference Room 3421 Villa Ln Napa, CA 94558 707-252-4411 Are you interested in learning about the newest cutting- edge research discoveries in MS? Or maybe you are curious about stem-cells and the possibility of a cure? Dr. Lucas Kipp, Clinical Assistant Professor, Neurology & Neurosciences Director and MS Neuroimmunology Fellow at Stanford will be hosting this special MS research update event. Knowledge is power when it comes to living with this disease, so don’t miss it! Call 1-800-344-4867 to register today! This event is sponsored by Crush MS. Friday, 11/11/16
6:00pm-8:00pm Trancas Steakhouse 999 Trancas St. Napa, CA 94558 707-258-9990 Napa Mix and Mingle is Sponsored by Crush MS Come join in the fun at our Fall Mix and Mingle event! This fall social is the perfect opportunity for you to relax, eat some good food and connect with Amy Clark, your local MS Society Community Engagement Manager and other National MS Society members. Come solo or bring your family or your friends. Food will be provided by the National MS Society. Alcohol will be available for purchase. We hope to see you there! RSVP is required! Register online or call 1-800-344-4867 to sign up! Contact Amy Clark at [email protected] or 415-230-6678 ext 75207 for more information. Link: bit.ly/NMSSMix1 Local vintners team up to fight multiple sclerosis
Napa Valley Register Crush MS raises nearly $50,000 for research Napa Valley Register Crush MS launch exceeds expectations Napa Valley Register |
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